IFOPA (International FOP Association)

FOP:
FOP (Fibrodysplasia Ossificans Progressiva) is a rare genetic disorder in which bone forms in muscles, tendons, ligaments, and other connective tissues. Bridges of extra bone form across the joints in characteristic patterns, progressively restricting movement. FOP is a disease in which the body produces not just too much bone, but an extra skeleton that immobilizes the joints of the body.


Symptoms:
Children with FOP appear normal at birth except for congenital malformations of the great toe. During the first or second decade of life, children form painful fibrous nodules over the neck, back, and shoulders which mature into bone in a process known as heterotopic ossification. FOP then progresses along the trunk and limbs of the body. These lesions slowly replace the body's muscles with normal appearing bone.
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