IFOPA (International FOP Association)

FOP:
FOP (Fibrodysplasia Ossificans Progressiva) is a rare genetic disorder in which bone forms in muscles, tendons, ligaments, and other connective tissues. Bridges of extra bone form across the joints in characteristic patterns, progressively restricting movement. FOP is a disease in which the body produces not just too much bone, but an extra skeleton that immobilizes the joints of the body.


Symptoms:
Children with FOP appear normal at birth except for congenital malformations of the great toe. During the first or second decade of life, children form painful fibrous nodules over the neck, back, and shoulders which mature into bone in a process known as heterotopic ossification. FOP then progresses along the trunk and limbs of the body. These lesions slowly replace the body's muscles with normal appearing bone.
For further Information & to know about IFOPA please visit ifopa.org

I'm Back

Hi,

I'm posting this after a year and a half blog hibernation.

Lots of changes in my Life during this 18 months period. Some struggle, lot of cherishable moments have happened.

Achieved a Important milestone in life, Yes!! I've got married. :-) Luckily to the girl i loved.

This happened on 3rd March 2006 @ Lord Muruga temple in Thiruthani.

I've hosted a website, http://www.sivapriya.org yet to decide on what shall be content of this site. Suggestions welcome!

Until we meet again,
aravind